Thoughts on living a public life with a stutter and on the value of early and intensive speech therapy

I have always envied people who can simply talk without it being a mental workout. As an advocate for evidence-based, environmental decision-making I often get asked to appear on television or the radio to speak on scientific topics of interest. Each time I do, I marvel at how easily professional communicators speak. I have never known that skill/gift as I lived my entire life with a speech impediment. I am a stutterer.

Thankfully (as I will discuss in this post), intense speech therapy as a child makes my stutter almost invisible most of the time. It only asserts itself when I am caught unawares, am under stress, or have had a bit too much to drink.

As a very young child, I was taught a series of tools to adapt. The tools include being careful with my word choice, avoiding words with multiple consonants too close together, singing words, and sticking to rehearsed scripts.

Practice and repetition also really help. I will typically practice in my head what I am going to say before I say anything. Going over how I will get from the start to the end of a thought before saying it out loud allows me to avoid the traps. The only problem with this approach is with important topics I can try so many variations in my head that I can sometime think I have said something that I have not. My wife laughs that I have most of our important conversations in my head, and forget to share them with my family.

As a child, besides the stutter, I could not make a number of sounds. The worst being the letter R, which I pronounced as a W except in certain sequences. The most humorous (to the older kids at school) was that I pronounced the letters “TR” as an “F”. This lead to a famous joke of telling Blair to say “fire truck” to an adult to see their response.

You may ask why I am writing this blog post and the answer is: because I want to take advantage of current affairs to push for more early-childhood services for kids with speech impediments. Having read the brave discussion of the topic by Joe Biden in The Atlantic (What Joe Biden Can’t Bring Himself to Say) and seeing the Democratic Party highlighting Joe Biden and Brayden Harrington’s speech issues during their convention; I realize that it is time that people with speech impediments forced themselves back into the conversation.

We must speak out about funding for early intervention and restoring/adding funding for speech therapy in our schools. We need to highlight the importance of respecting individuals with speech impediments in order to allow them the time they may need to let themselves be heard.

I grew up in what I now understand was the golden age of speech therapy in schools. I was identified in Grade 1 as needing help and for the next couple years got regular and intensive help from a school-supplied speech therapist until I could roll my R’s and completely assimilate the tools necessary to hide my other speech challenges. I can’t count the number of times I was required to say “Ricochet-rabbit runs rapidly down the road” but every time I got it perfect I got a penny.

Even with all the tools I learned, anyone listening to me will get the impression that something is not quite right. I speak in a halting pace and will stop frequently as I struggle to get words out. This is not because I don’t know what I am trying to say, but because I cannot get the words out. That delay is me trying to find a different way to get ideas out of my head without access to the words I need, but can’t say.

When people say “you should think about what you are going to say before you say it“; It really frustrates me. In order to speak semi-fluently I literally have to think of every word I want to utter before I say it out loud. For me a casual discussion involves a constant effort of thinking about every word before it comes out of my mouth. I simply don’t have the ability to speak quickly and easily like the radio hosts I envy.

Interestingly, one of the parent’s on my daughter’s soccer team is a speech‐language pathologist (SLP). During my first discussion with her at the soccer field she immediately recognized how I was using all the tools she taught in her practice to speak as fluently as I possibly can. As someone who only treats children, she noted how satisfying it was to see that the lessons she teaches being implemented by an adult.

As someone with a speech impediment, I have often felt that my voice was not heard in conversations because I don’t get to the point fast enough. I know my lack of fluency can be tough on people I’m talking to but that doesn’t make my input valueless. My wife and kids are quite used to it and will fill in the gaps at home but sometimes all I need is for a bit a patience in an impatient world.

Earlier in my career, I had a supervisor who simply did not understand the concept of a speech impediment being a real thing. Even after my condition was explained to him, he still reprimanded me for coming to meetings “unprepared” if I spoke in a slow-halting pace, or stopped in mid-sentence before finishing a sentence. This supervisor included comments to this effect in my performance reviews and while I am gladly rid of this man from my life, I can’t help but wonder if his comments delayed my professional development or set back my career.

You might see a trend in this post. It is the importance of intensive therapy as early as is practicable and with giving those with a speech impediment the time they need to express themselves. Unfortunately, our school system no longer places the emphasis it once did on this topic. The hours of intensive one-to-one therapy I received as a child would never be available today. Many kids age-out before they can jump through all the hoops necessary to even qualify for the therapy they need to become fluent. As Speech and Hearing BC puts it:

Speech and language skills influence the trajectory of a child for a lifetime. These skills also link to cognitive development, social skills, and success in academic learning. At least one in ten preschoolers need to see a speech‐language pathologist (SLP) for support in developing age‐appropriate communication skills. It is not unusual for children to be left waiting for months or years to see a publicly funded SLP in BC, due to individual SLP caseloads of over 80 children. Some children will not have access to a SLP before kindergarten due to wait lists

The recommended caseload for one full time equivalent (FTE) SLP is 25‐40 children. Assuming the maximum caseload of 40 children and a prevalence rate of 10% of preschoolers requiring SLP services, BC would require 552 full‐time SLPs to address the estimated need, significantly more than the current 165.

More problematically, outside of the school environment BC’s basic Medical Services Plan does not cover the cost of private speech, language, or swallowing services. Talk about creating an uneven playing field. Making less well-off families choose between speech therapy and paying for other family needs is simply not fair.

Kids with speech issues who are not treated early will lose out for the rest of their lives and if they can’t get the services early in their lives (when it is covered by the school system) they may never be able to afford the treatment they require to develop the skills they will need to succeed over their lifetimes.

From a public purse perspective, getting these kids intervention when they are young will pay dividends over that child’s lifetime. Reducing truancy, better performance and fewer disciplinary problems through their scholastic careers are all observed outcomes of early intervention. I won’t go into what a difference it will make to their quality-of-life both through their school years and in their lives after school. To be clear here, I am not asking our government to break the bank, but directed funding to increase our per capita number of SLPs to a national average would be a great start. Funding speech therapy for young people through medicare would be another great change to make up for all those who got missed by the school system would be great as well.

I can’t say it enough, we need to increase funding for early and intensive intervention for speech impediments in our schools. We need to highlight the importance of giving kids the tools the need and respecting individuals with speech impediments in order to allow them the time they may need, to let themselves be heard.

Author’s note

A lot of people I have known a long time have commented that they never realized I had this challenge….and that is the ultimate point of this post…if you give a child early intervention for as little as few hours a week for a couple years you can get a child who can pass as normal which means they don’t get picked on and they get a chance to thrive.

This entry was posted in Uncategorized. Bookmark the permalink.

8 Responses to Thoughts on living a public life with a stutter and on the value of early and intensive speech therapy

  1. Ruud Hommel says:

    Well done Blair.
    A little courageous as well?
    Nah, I don’t think so, your writings don’t suggest any kind of lack of courage.

    Besides that, never saw a stutter in any of your blog-posts 😉

    There’s a question though. Your family supplies words at times. I too thought earlier that that would help the speaker, until it was made clear to me that it is not much appreciated by the person in question.
    Care to vent an opinion?
    Thanks.

    Like

    • Blair says:

      It is all about context and your level of connection. My wife wasn’t sure what to do when we were dating and eventually she was able to figure out when I needed the help and when she she should wait out the delay. I also have a type of aphasia which leaves me struggling to remember (or utter) nouns and verbs and when she can tell I am stuck she will fill in the gaps, which can be a life saver especially when the noun happens to be a name.

      What is not appreciated is folks who say things like “get on with it” or or who speak over you when you are struggling.

      Liked by 1 person

      • Ruud Hommel says:

        Learned a new word today: “Aphasia”.
        Immediately gives a name to what my wife of 48 years and I suffer from these days.
        One should witness some of our conversations, where we both know the intention of the sentence but neither of us can find the subject’s “word/name”. At times hilarious (also for us and then the “get on with it”, indeed, just accelerates the fun.).
        Half an hour later, either of us pops up the “word” and it’s smiles all over again.
        The good thing is that after all this time together aphasia does not really matter.
        Kids don’t have this advantage and after your post, I have greater respect for my daughter in law, who is a “speech-teacher” (Germany). Assistance and funding really should be through the educational system.

        As an example to all who wish to get old, learn to know your partner well.

        Like

      • Blair says:

        Technically what you are describing is called either Anomic aphasia or Nominal aphasia

        Liked by 1 person

  2. tamichael says:

    Excellent post, Blair. Well done.

    The amazing thing, having known you my entire life, this blog is actually news to me!

    Either way, couldn’t agree more with your words.

    Liked by 1 person

  3. Jim Dinning says:

    Well said sir. Thank you for sharing your personal journey.

    Jim Dinning
    +1.403.807.1033 Mobile/Text

    “In this world, the optimists have it, not because they are always right, but because they are positive. Even when wrong, they are positive, and that is the way of achievement, correction, improvement, and success. Educated, eyes-open optimism pays; pessimism can only offer the empty consolation of being right.” David Landes

    >

    Like

  4. Margy says:

    Excellent eye-opening post! My daughter had a problem with her R’s mostly. We hired a speech therapist (it wasn’t funded by the school, nor covered by any insurance or assistance program.) It was the best investment we could have made for her.

    Like

  5. I found this hard to read as a person who stammers. I appreciate your viewpoint but, for me, stammering is a valid way to speak and should be respected. We should be fighting for accessibility and inclusion, not the eradication of stammering. Intensive childhood stammering therapy towards fluency can be damaging to children who do not become fluent and, honestly, the evidence-base for these approaches is not great. Best wishes to you. Patrick

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.